Recovery without limits: brain science & hope for stroke survivors | Kari Dunning | TEDxCincinnati
Recovery without limits: brain science & hope for stroke survivors | Kari Dunning | TEDxCincinnati
New technology allows us to look inside the brain to see recovery after stroke. Kari Dunning describes how this research challenges long held beliefs while giving new hope for stroke survivors.
Dr.Dunning is Associate Professor & Director of the Neural Excitability, Therapeutics and Recovery (NET Recovery) Laboratory in the Dept. of Rehabilitation Sciences at the University of Cincinnati. She is a member of the Greater Cincinnati Northern KY Stroke Team. Dr. Dunning has been involved in over 30 research studies funded by a variety of agencies including National Institutes of Health, Centers for Disease Control and Prevention, private industry, publishing over 45 peer reviewed articles and conducting over 30 scientific presentations in the past 5 years. Dr. Dunning is the recipient of the previous four year American Heart Association Scientist Development Award and the Majistro Family Research Grant from the Foundation for Physical Therapy.
This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at http://ted.com/tedx
I am a level one trauma nurse of many years that worked at leading facilities. I was going to be a flight nurse. I give this background to let you know I am familiar with trauma. I am no longer a trauma nurse which was my passion, secondary to consenting to this procedure I was told was safe and effective.
I am addressing those in rehabilitation medicine. I am asking for help in addressing these brain injury outcomes, now proved around devices in the California courts. The issue is electroshock or ECT. We have sustained repeated brain injuries at the hands of trusted providers. We are now sustaining further damages from providers, in trying to find help, and this is where I turn to your profession.
Since providers do not want to implicate other providers nor facilities, never mind their risk their medical career if they were to expose this, we as victims of this are greatly suffering. I do not like to use the word victim, but here it applies.
I am diligent with my own care in trying to recover from this and am far from silent when I cannot access needed resources. I am lucky in this way to be outspoken and to have a background that is well aware of testing needed and what has transpired around this. I am met with the same as my peers often in spite of this.
We are TBI survivors just as any other survivor, only our mechanism of injury being electrical was delivered by physicians hands. We struggle daily to maintain our lives after not just one head injury, but multiples. We are told we have not been harmed. We are gas lighted when our reality is already skewed by traumatic brain injury. We ask for help, but doctors ignore and minimize us.
We cannot access testing nor services, because reason for same would have to be acknowledged, and better to ignore than have your name as a provider in the notes exposing this battery at best. My peers are killing themselves because we are discounted in our suffering and actually in many instances treated with overt contempt when trying to find help from doctors and staff.
Below is an outcome that is mine. I have been now identified with damages to my frontal lobes, cerebellum, and temporal lobes by a TBI specialist secondary to electroshock. It is is the medical records. I ask you in rehabilitation medicine to have these conversations with others so we can address this harm and get help to those that desperately need it. Expose this and shine a light as the public is at great risk. You are familiar with our struggles. We are just like any other TBI patient that needs your help and recognition please.
There is a test called the VNG that is used to identify concussions and other brain injuries. It is the in office test similar to the on field test the NFL players now get called the I-PASS. Below are damages recorded in notes by TBI specialist to outcomes of electroshock. Perhaps this test may be used to identify TBI in ECT patients, as it is used for TBI in the NFL. These below findings around ECT are resulting from VNG testing. Patients are also showing changes on MRI, EEG, neuro/cog testing, and SPECT.
3. Mild L ptosis
4. R hypertropia worse in L lateral gaze
5. L exophoria
6. L upper and R lower facial paresis
7. L roll had tilt
8. Olfactory recognition impaired bilateral
9. VA ration horizontal square wave jerks R:2:1 L: down-beat nystagmus 2:1
10. Saccade testing reveals latencies increased all planes except U/L
11. Marked cervical substitutions with pursuits in all planes with intrusive saccades worsening in L prusuites
12. Pursuits downward reveal intorsional glissades
13. Gait testing reveals mild decrease inR arm swing: with dual tasking, gait becomes slightly wide-based and arm swing slightly decreases.
14. Finger-nose past pointing R>L
15. Somatic pinwheel perception diminished L L5
16. Vestibular head impulse testing: Moderately decreased in LARP plane
17. Saccadometry: Prosaccade 20 degree : intrusive saccades to the R
18. Anti saccade 10 degree: 79 percent directional error rate
19. Nystagmus: High frequency right beat and down beat nystagmus
20. Central gaze: Head movement, L pstosis and nystagmnus
21. Horizontal gaze L 24 degree Notable pitch plane head movement
22. Horizontal gaze R 24 degree: Increased fatigue, decreased stability
23. Upward gaze 14 degree: Notable pitch plane head movement
24. Downward gaze 14 degree: Notable pitch polane head movement.
25. Horizontal optokinetics 25 dps: L optokinetics provoked dysconjugate gaze. Reflex failed with R otokinetics
26. Horizontal optokinetics with volitional targeting: Worsens
27. Vertical pursuits 10 degrees: Intrusive saccades with downward pursuits
28. Random vertical saccades: Upward intrusive saccades, cannot maintain downward gaze
29. Vertical optokinetics 25 dps: Reflex failed.
30. Vertical optokinetics with volitional targeting: Worsens
31. Repeated random horizontal saccades; Latencies increased significantly bilaterally
Please see ectjustice now owned by law firms participating in national product liability suit. My gratitude for any exposure you can bring to this issue.
Great video. Thank you.
I had my stroke at 17 then cancer at 19 but now I’m 27 and reading a book called strong after a stroke, it’s soooo good I can’t recommend it enough.
I’m getting full recovery while I travel around South America it’s fun and my highest goal.
My mother just got stroked this year 2019, shes 80 yrs old, shes getting his PT . Looking my mother I always told her to fight. When im Infront of her. I always convinced her she can do it, ill always at her side, but the true, I always crying every night.i feel its hard for my mother and shes taking anti depression. But still I have to be fighter in Front of my Mom. I love you mama.
My mom had a hemorrhagic stroke yesterday, when my brother took her picture at the hospital she fixed her hair. When I talked with her on speaker phone she cried but my brother who is a Physician Assistant seems pessimistic which bothers me. I don’t want to be full of false hope but I believe in my mom, that she can make the best of it. "I’m in the business of hope" what a beautiful inspiring woman & Story.
My mother had strokes called 7th Nerve palsey dated back 2014. After that in 2017 again 6th and 5th nerve palsey. Now she can cook, can walk but is not able to speak, think or respond properly. Please guide me if we can go for rewire???
Oxígen chamber? Makes miracles! Find out!
I had a stroke last year ag 47 this is so powerful
As a recovering stroke survivor for three years this was an awesomely inspiring ted wish I had seen it when I was recovering in the hospital after initial stroke
Hi , wonderful service to human kind and god bless you to serve many people.
Mam, I just wondering how that 75 years old gentlemen post stroke of 20 years didn’t have spasticity .
How it’s possible ,Within 4 weeks of treatment patient could lift a potato chip to eat .
How did you managed spasticity before wiring ?
Please don’t mistake me for this query .
Thanks
Thank you, I really needed to hear this! My fiance suffered from stroke 2 months ago. I always encourage and support him so he will never feel alone in this battle. We always celebrate every little progress ❤️
Thank u I had a big stroke 7years ago I lost my left side but I have never give up and listened to u give s me more stronger I am getting a new foot t cast on Saturday I hope that this one will Mack me able to walk better I will die fight img it stroke car is in the Stone Age in Northern Ireland I bought many casts on line when I find a brace I think will help me I start looking for the next one I will be like u some day with gods help
You Just made my day.
I just came acros your channel madam.
I hard a stroke called brain haemorrhage stroke in 2017 30November, I was found on the first December. I was taking to hospital, they did operation I left this world for 2hours and 30mins. Came back to life then enter coma for 3months .
Came out of coma the Doctor was shock because I ask for 3things my son, my bible and food.
I remember the one of the Doctor and nurses ran to get oat porridge for me . And bible.
I
Iam in tears cos last 2weeks ago the Neuro Doc told me my hand can never recovere and phisio therapy told me the same. But I told them I will be back with victory .
As I told them Last year that I will not be on whilechiar for 2days after I was discharged from hospital.
They brought me home with on whilechiar for 2days after I refuse to use it . I keep on praying 4times a day . Asking God almighty to direct me what to find online.
I have find many health benefits about food, lose weight.
I find about how to recover from High blood pressure,
Today I find you.
I made a lot of note.
My No1 goal I heard from you is I should not give up. Practice 4times a day for 20mins.
GOD bless you so much given your knowledge to world.
I will find you on Facebook and I will keep you posted to tell you how Iam doing in a year time.
I ha
My mother had a stroke on September 20, 2018. She had brain surgery on September 21, 2018. She was paralyzed on her left side at first. She seemed as though she would forever remain paralyzed and without much hope. She went to rehab for 2 1/2 months. And then she came home December 5th, 2018. I am her daughter and I care for her 24/7. She is learning to walk again. At first I was heartbroken because it took 2 people to care for her. And I thought I would not be able to care for her myself. I had always told her that if anything ever happened. That I would always take care of her. That I would never put her in a home. During her stay at the rehab, I came down with puemonia. During my 3 week absence she began walking again with a walker. And now she is home. I am working with her everyday. And we have physical therapists that come out to our home 2-3 times a week. We are suing her doctor for malpractice. We currently have 2 Attorneys assisting us in doing this. We will get through this togeather. It has always been just me and my mom. Ever since I was a kid. She was and is my best friend. I will never give up on her. And I will care for her to the best of my ability until her last breath. She was honestly the best mother a person could ever hope to have. I was blessed when I recieved her to be my mother from God. I cherish every moment with her. This video brought me more hope. May God Bless everyone who has to watch this video and others to learn about strokes. They are terrible. May God in Heaven Bless us all…
Oh lady… You are a magician
You do a good business of hope..
I had a stroke 29May 2018, left side still useless, at home in a hospital bed U.k. 62 when it happened 63 now.
Hi there beautiful people, my mother just had a stroke a few days ago, she’s still in the critical phase but I want her to get better as much as possible and I have deep faith in the power of the mind and the body. Now the every day training is an important factor if you can see the urge of it. What do you do when my mother is in neglect of what happened due to the brain damage? To still stimulate her to act and practice practice practice
How can I find out more about this?
That is why i don not believe you. You sell your book, and that is your goal.
Good morning .i had stroke last year 2018 but my speech slurred im doing therapy
My dad had a ischemic stroke on jan 7 at the age of 56 causing hyper tension. After 6 month he had some changes. But doctor said that he will have memory loss and get well at 90% only. Now sometime he had no concentration after few minute . DOCTOR SUDGEST RISPERIDONE TABLET FOR TWO WEEKS. AFTER 3 NIGHT TAKING OF TABLET HE WAS CLEAR IN MIND FOR ONLY ONE DAY. AFTER HE DO THE SAME OF UNCONCIOUSNESS CAUSING THE TAB GET SIDE EFFECTS. NOW WE DONT KNOW WHAT DO TO PLS HELP ME DOCTOR.
I had a stroke at the age of 21 1/7/19 I was home for three days before going to Chandler regional Hospital. I had a headache and was nauseous for those three days. I was not paralyzed or weak. I have seizures when my blood pressure gets to high I’m currently on 1500mg of keppra twice a day with hydroclorthizide, amalodapine, and Lisinopril. I smoked a lot of marijuana before and after my stroke. I’m surprised I’m not dead and I love life and changed my eating habits and stopped drinking energy drinks and less soda.
How can I get in contact with you?
after brain surgery my mom is unable to walk etc…….this gives some hope
Great speech, I just read the book Stroke Rebel, which is another living proof of what Mrs. Dunning says here.
iam26 years old and neen stroke my left side body
Inrecovery now
no doctors in america talks about this. but (Aikido) streches help with hand recovory
Fish oil and coconut oil causes brain verve regeneration. The army and the sago vine disaster victim. Try to walk 20 fo 40 minutes a day. It releases BDND. A brain factor. I’ve had multiple strokes and aphasia and couldn’t walk but only crawl. Had to learn to walk again. Couldn’t understand English in one stroke. U have the weak limb it’s it’s a stroke. The brain is trying to relearn a new pathway to the limb. All this is slow. Patience and this works. I’ve been there.
Very illuminating & encouraging talk. I a suffered from stroke 13 yrs. ago. I know the pain & difficulty of living after stroke.But there is always hope, if you don’t give up.Keep trying.
Nope there are definitely limits. Thanks though.
I had a stroke on 6-6-19 at 46 its has changed my life for ever. I drove my self from work to hospital when i had.i have apshia among other thing. But i have learnd the i have push my self Everyday train my self to talk agine i practice talking to my self. This video give me hope. And stroke savior we are here for a reason. One day at a time God is good.
So glad I stumbled upon this, my mother recently suffered a ischemic stroke. Doctors were able to remove the clot that was in her brain through her femoral artery. It’s only been 3 days ago, her speech is very delayed and it takes her a while to say one or two words. She cries because she’s trying to talk but it won’t come out. She can understand what you’re saying and follow small commands. Her left side is immobile and so far she has not passed her swallow test. I just wonder what will her quality of life be. Will she ever walk again and be able to take care of herself or will she need 24/7 nursing care forever. I know it’s a case by case situation and every stroke patient recovers different but these are just some of the questions that run through my mind. Oh and the neuro doctors said she’ll never be able to drive again.
Wauw thank you ever so much . I really needed this video. My dad has just suffered a stroke after having a cardiac arrest. He survived both. And he is truly a survivor. We are worried how much he can do. We love him ever so much.
Very positive talk, esp. if you are a stroke patient.
I’m sorry Kari Dunning. All of it was meant for Jill Bolte Taylor. So wants again sorry
when did Allen Degenerius got her doctrine 😁☺️
This video gives me hope. My dad had a stroke in Feb and he is now in a facility on a ventilator. They’ve tried to wean him off, but they say he cant breathe on his own for more than 3 min. I have hope that he may begin to breathe again. I pray for his recovery every day. He moves his left arm and is actually pretty strong. He recognizes voices and squeezes hands when asked a question if he understands.
Anyone else know of someone who couldn’t breathe on their own after stroke and made a recovery?
Allahu Akbar..Allah Is The greatest..Never loose hope my brothers and sisters
My mom suffering from strock…😖
Thank you.
we need more neurologist doctors and PTs to watch this instead of keep telling us the brain cells are dead ….
Hello everyone
I want to use this medium to share of the Goodness of God in helping me recover of Stroke. In 2002 November 8 I had my first Stroke, After returning from my friends house, immediately I was rushed to the Community health Care. The neurologist said that I had been having "mini-strokes" or "Trans Ischemic Attacks (TIA’s)" for years. All the physicians agreed that a congenital heart problem called Atrial Septal Defect was causing the strokes. After the first major stroke, however, I was not well enough to undergo the corrective heart surgery. First, I would have to build strength and endurance through physical therapy, The right-sided strokes had rendered the left side of my body numb to the touch, heavy, and extremely uncoordinated. Peripheral vision was permanently damaged. It was difficult to stay awake, least of all alert. The brain stem swelling caused imbalance, dizziness, and at times a slowing of respiration. Stroke affected vital pathways in my brain, causing constant electric-like pain on the left side of my body.
After the second stroke,I was placed on machines aided life support and the doctors tried all they could but I wasn’t recovering they decided i give a traditional herbal doctor a try, since all they have done to revive me was to no avail. My Children took me back home and reach out to my friends and family for help. luckily for them A college friend of mine had a uncle who was a traditional herbal doctor; "Dr kpomosa" he base in Indianapolis IN and has helped so many people all over the world with his herbal formula ; so they said. My Children were reluctant to give his herbal fomular for stroke a try, they needed me to get well by any means necessary because there mum died of Cancer years Ago.
They were willing to go any Length for a cure. Well to God be the Glory Dr kpomosa was a God sent, he placed me on his medication, although he wasn’t present, but with his instructions my children where able to administer his medication that was sent via Transworld express delivery. His medication was a huge miracle, it was like he had my brain refreshed, my brain began to have control over my body system,3 months after completing dr kpomosa herbal fomular, I regained the ability to walk, speak clearly and drive very well. To God alone I give all the glory and am for ever greatful to Dr kpomosa for being a hand of God in my Life.
I want people to think back to Natural herbs, that’s why am sharing this.i believe God has hidden the solutions to all sickness and diseases in Natural herbs and root that we don’t pay much attention to. Am a living testimony of Natural herbs and root. If you or a loved one is going through a deadly diseases that seems impossible to cure totally, believe me root and herbs is the Solution. You can reach Dr kpomosa on his Facebook page "Dr kpomosa home of relief" for all in need of a permanent cure to stroke or any other Chronic disease like Cancer that took my beloved wife. Dr kpomosa is hope for all. Like Dr Kpomosa would say ‘to every problem there is a solution
I’ve broken every barrier that my Doctors have set, since my strokes
my name is Percy and i suffered a stroke 2 weeks ago i’m so thankful i’m still here i can still walk and talk didn’t lose any memory I’ve been going to therapy and getting better day by day
Wow! Kari Dunning is amazing
Kari i personally find your videos inspiring, but i never found a photo of yours during your so call;ed stroke. I am a male who now is 51 years. In 2017 february 9th a had a stroke. A brainstem stroke. I had a headache since october 2016. At the Maasstad hospital Rotterdam,they made 2 mri scans and they could not find anything. In late january 2017, they found (after a 2 color ct scan) that in my brain the blood flows in one certain vein, both side. During that time my bp and blood sugar was always oke. Still my bp and blood sugar is oke. But now i am paralyzed on my right side and i have difficulties with my speech too. Every day i work on my own and every week i get physiotherapy of one hour. at home.
I had a minor stroke and only lost balance on my left side. After four weeks, a I can drive and manage well with a walker. At home I don’ t need the walker. My Dr was not very encouraging, so I appreciate your work very much.
Brother had a stroke a year and a half ago. He didn’t get long enough rehab in hospital and then rehab at home wasn’t enough. Like 15-20 minutes 2 days a week. Now insurance no longer wants to pay. Only 52 years old. Struggling to keep him motivated. Thank you for the video. Gives folks hope.