9 Comments

  1. Jamie Leckey on December 16, 2020 at 9:29 pm

    I am so glad I found this. I’ve always said my migraine as a kid was connected to my Post Stroke pain. This is the first time I’ve seen a doctor confirm it. I also get pinched nerves in my shoulders frequently. I was a 16 yr old female when I had my stroke and have all four types of post stroke pain. 21 years later & I’m still dealing with it.

  2. retex73 on December 16, 2020 at 9:30 pm

    This is a wonderful presentation about post stroke pain. I had a few strokes which have left me with good mobility but awful migraines. They’re not particularly painful but very debilitating in that they impact motor functions and sensations. Covid has proved a huge barrier to getting good advice leaving me ( and others ) to fend for ourselves. After watching this I know to research down the Central Post Stroke avenue. Many thanks Dr McAlpine for posting this. My love and well wishes to fellow stroke survivors. I know it’s hard but stay positive and do your best to extract every bit of joy out of life in what ever capacity you have to enjoy it

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  4. Miss Kristin on December 16, 2020 at 9:39 pm

    I have been suffering from post stroke pain on my entire right side for almost 18 months. It is unbearable. I found a few research papers about vestibular caloric stimulation and how it can help thalamic pain syndrome. I convinced my dr to do it today, and it worked! My pain level has dropped from about a 7-8 to a 3-4. It is a miracle. It is so easy to do, and a little uncomfortable but not painful at all. Basically the nurse irrigated my ears with really cold water. It makes your eyes jump and makes the room spin for a minute or two. It was nothing compared to the pain I have had every day. This was at 10:00 this morning, and now 12 hours later there has been a definite reduction in the pain. The burning sensation is almost gone, and the edge is off of the general pain. The tingling is still there, but not as intense. According to the research, it could even get better in the next few days. I am going back to the dr to do it again next week. It is truly a miracle and I can not believe it worked. Here is the research I found — http://www.researchgate.net/publication/5305658_Behavioural_evidence_for_vestibular_stimulation_as_a_treatment_for_post-stroke_pain.

    It has given me hope when I thought there was none, and I was doomed to a lifetime of horrible pain. I am only 45 years old and have lots of life left to live! PLEASE try it – it is so easy – I want to shout it from the rooftops!
    Kristin

  5. Jess Mills on December 16, 2020 at 9:42 pm

    25 to 60% ..? That’s quite a large range.

  6. Donnie Ray on December 16, 2020 at 9:53 pm

    lhad a horibale strok in june dont know what id for health car but i will never go back to the v.a
    its wothless i to get migranes and horribile cramps i told the dr. she said cross you fingers hope they go away wtf is wrong with her my daughter found this on the net i never knew thats normal after a stroke
    dont know what i will do for any health care nor do i care just uffering every day

  7. Lizzard Breath on December 16, 2020 at 10:00 pm

    Thanks for this. My older brother has been really struggling with Central Pain Syndrome post-stroke. I am looking for resources to try and help extended family members to better understand why he has withdrawn from social situations and does not seem like "himself" even though (to others) he looks as if he has experienced a fairly good recovery or has minimal symptoms in his limbs, etc.

  8. Little Red Presents on December 16, 2020 at 10:03 pm

    Thanks so much this describes my pain perfectly. I had a stroke may 2020 4 months later i have terrible days and nights with this pain. Not sure whether my doctor believes me but it can be totally incapacitating.

  9. Donnie Ray on December 16, 2020 at 10:14 pm

    j have pain after 2 strokes i told the dr. she gave mne 100 mg of gramemiten does not work so i went back at the huntsviile v.a dr. gill she fussed at me i felt guilty to fight with her to gtreat my pain from the 2 strokes i told her i would send back all my meds bp meds 1 to slow my heart down 1 to reduse my choestal she sent me 10 mg of cypylonze does not work im tired of argure with her so i sendeing it all back i cant cramps all the time plus headachs bound the be something that can help me ? all i know i told her i was sendinig it all back it beeen june hyr and god to i suffer llok im a old man with 2 xsttokes and afib puls poly vera

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