Living with Hemiplegia

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In July 2012 a group of young people with hemiplegia got together to discuss, plan and film a short film. The footage is a great insight into what it is like to live with hemiplegia, featuring their views and feelings and inspiring interviews with parents.

18 Comments

  1. John Decker on December 30, 2020 at 9:39 pm

    I’m a 35 year old living with left-hemiplegia in the United States.   Great videos that you guys have created here, I wonder if you ever collaborate with CHASA in the US.  I think there is a lot of information that could be shared 🙂

    Growing up, the physical aspects affected me most and I see that bullying is quite a common theme here.  Its always good to see that bullying is becoming more and more socially unacceptable.

    The most difficult battle I face today is simply keeping up in the Walmart-Operations driven economy.  Adults are generally ok with someone in the work-place having a disability, as long as it does not affect their productivity numbers or what their definition of "efficient and hardworking" is.  Short-term memory loss becomes "not detail oriented/indecisive"  Cognitive issues become "Not paying attention or careless"   As I write this now I am generally rated as a low-performing employee and under constant scrutiny because of a general lack of awareness.   The lady doing ballet in this video describing the mental aspects of living with this is exactly the same things I face every day at work.  

  2. alikazam on December 30, 2020 at 9:40 pm

    Fantastically informative video about a disability I knew very little about – well done! [:

  3. SarahFunes on December 30, 2020 at 9:44 pm

    I really enjoyed seeing young kids and young adults featured in this video! Having been diagnosed with hemiplegia because of a brain tumor as a child and living with it ever since this really resonated.Thank you! 

  4. Mohamad Herzallah on December 30, 2020 at 9:44 pm

    I’m hemiplegic in the left side also, this is my Video on youtube :
    (Mohamad Herzallah-Medical Report.wmv )

    The thing that I want to say is the Hemiplegic can do everything other normal person does, except that will be a bit slower

  5. Oscar Vanneste on December 30, 2020 at 9:45 pm

    my girlfriend has hemiplegia, she is the most wonderfull person i know!

  6. MegaKimster1 on December 30, 2020 at 9:52 pm

    My son has hemiplegia so this was very interesting to watch and will be good for others to understand what he is going through .

  7. Double U on December 30, 2020 at 10:03 pm

    i am hemiplegia too. can i connect these childrens

  8. Dennis Davison on December 30, 2020 at 10:04 pm

    I have had hemipalegia for 39 years. I can tell you, life does get easier the older you get, at least in the social aspects. Adults aren’t as critical and far more understanding!

  9. Liz on December 30, 2020 at 10:07 pm

    Brilliant gives a great insight into children, their condition and how it affects them (parent of a right hemiplegia child) xx

  10. KFLOW on December 30, 2020 at 10:13 pm

    i also have on my left side and i was bullied a lot when i was younger but it gets better though i never gave up in school or to bullies and i am now finishing my masters degree at university

    have faith in yourself

  11. sentinel supreme on December 30, 2020 at 10:16 pm

    Ghetsis from pokemon black and White has hemiplegia

  12. Josh ForeverAsking on December 30, 2020 at 10:19 pm

    Steve Fry sent me here! 🙂

  13. Leila Roberts on December 30, 2020 at 10:20 pm

    That was a great video thanks for creating it, its good to see older kids with hemiplegia so i have an idea what it will be like for my little boy growing up. I agree with your dad hemi kids have been touched by an angel and are beautifully special.

  14. EcoBayou on December 30, 2020 at 10:22 pm

    Nice job!

  15. gaming jjz on December 30, 2020 at 10:29 pm

    i have it and it helped my bro understand

  16. Vlad Avram on December 30, 2020 at 10:29 pm

    I also have hemiparesis for 23 years on the left side but fortunately I always had great people around me, my parents were always supportive of me, my schoolmates and friends are understanding and got along well, never got bullied so luckily my condition was never a big deal for me.

    Stay strong my fellow special ones, always try to look at the bright side in life and most important of all NEVER let people’s words or actions make you think less of yourselves!

  17. babyhariss on December 30, 2020 at 10:34 pm

    brilliant insights. thanks you for the post. My 10 month old son diagnosed with AHC Recently.
    Youtube handle: babyhariss

  18. Simran Gill on December 30, 2020 at 10:37 pm

    i have left side hemipleia and im 15 and im using splint atm and its difficult but be yourself

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