Importance of Stroke Partner / Spouse / Caregiver Self Care Part 3 – Support Resources
Importance of Stroke Partner / Spouse / Caregiver Self Care Part 3 – Support Resources
As the majority of stroke survivors will eventually return home. We the stroke survivors, must depend on our spouses, partners, and family members or close friends to take on the role of care giver.
Seventy six percent of caregivers report the first few months after returning home are the most stressful. Predictors of poor stroke-related care-giving outcomes were emotional distress, low benefit appraisal, high task difficulty, and high threat appraisal. Findings suggest potential areas for multidimensional caregiver interventions.
Here is a list of various support groups.
Canada
March of Dimes
https://www.marchofdimes.ca/EN/programs/src/Pages/src.aspx
March of Dimes – After Stroke
https://afterstroke.marchofdimes.ca/
Heart and Stroke Canada Care partner support
https://www.heartandstroke.ca/services-and-resources/care-partner-support
Heart and Stroke Canada Social and peer support
https://www.heartandstroke.ca/services-and-resources/social-and-peer-support
Community Resource Guide for Stroke Survivors and Caregivers. (Ontario Specific)
https://www.mackenziehealth.ca/en/programs-services/resources/documents/Community-Resource-Guide-for-Stroke-Survivors-and-Caregivers-1.pdf
North Western Ontario Regional Stroke Network – Stroke Survivor and Caregiver Resources
http://tbrhsc.net/nwostroke/
USA
American Stroke Association For Family Caregivers
https://www.stroke.org/en/help-and-support/for-family-caregivers
American Stroke Association Support Group Leader Resources
https://www.stroke.org/en/help-and-support/support-you-are-not-alone/support-group-leader-resources
United Kingdom
The Stroke Association Support in your area
https://www.stroke.org.uk/finding-support/support-services
Different Strokes – Support Group
Scotland
Chest Heart and Stroke Scotland
Community Stroke Services
https://www.chss.org.uk/community-stroke-services/
Stroke support groups in your local area
New Zealand
Stroke Foundation – New Zealand
Stroke Clubs
https://www.stroke.org.nz/stroke-clubs
Australia
Stroke Foundation – Australia
Support programs
https://strokefoundation.org.au/What-we-do/Support-programs
Local stroke support groups and choirs
https://strokefoundation.org.au/About-Stroke/Help-after-stroke/Local-stroke-support-groups-and-choirs
World Wide Resources
World Stroke Organization
https://www.world-stroke.org/
Stroke Support Organizations
https://www.worldstrokecampaign.org/he/86-connect.html
If you notice the signs and symptoms of a stroke in your or someone around you
Balance / Co-ordination / Confusion
Eye and Vision Problems
Facial Droop
Slurred Speech
Stuttering
Inappropriate Word Usage for situation or context
Inability to stand
General Weakness or Weakness to one Body Side
Inability to properly and evenly Smile
Please Immediately place that person in a position of comfort and Dial 911
www.heartandstroke.ca/FAST
#IWillAgain #UpAgainAfterStroke #StrokeSurvivor #Strokeunder50 #FightStroke #StrokeAwareness
You can contact me in the following methods
strokeassaulter@gmail.com
Here are the articles I used to research this video:
Stroke family caregivers’ support needs change across the care continuum: a qualitative study using the timing it right framework
https://www.tandfonline.com/doi/abs/10.3109/09638288.2012.691937
The stroke patient and assessment of caregiver needs
https://www.sciencedirect.com/science/article/abs/pii/S1062030398900036
“Timing It Right”: A conceptual framework for addressing the support needs of family caregivers to stroke survivors from the hospital to the home
https://www.sciencedirect.com/science/article/abs/pii/S0738399107004417
Intervention studies for caregivers of stroke survivors: a critical review
https://www.sciencedirect.com/science/article/abs/pii/S0738399104001028
Stroke Caregiving: Difficult Times, Resource Use, and Needs During the First 2 Years
https://www.healio.com/geriatric-medicine/journals/jgn/2006-4-32-4/%7B2ae2ef8e-58b6-4b85-8a1f-ac158f3f79b6%7D/stroke-caregiving-difficult-times-resource-use-and-needs-during-the-first-2-years
Predictors of Emotional Distress, General Health, and Caregiving Outcomes in Family Caregivers of Stroke Survivors
https://www.tandfonline.com/doi/abs/10.1310/GN0J-EXVX-KX0B-8X43
Top 10 Research Priorities Relating to Life after Stroke – Consensus from Stroke Survivors, Caregivers, and Health Professionals
https://journals.sagepub.com/doi/abs/10.1111/j.1747-4949.2012.00942.x
