Cardiac Amyloidiosis – Treatment #28 – First treatment in AZ

Cardiac Amyloidiosis – Treatment #28 – First treatment in AZ

Well, it finally happened. I was able to get approved for treatment at Mayo Clinic specialty center at the North Phx campus. Treatment #28 today. Same as recent – Carfilzomib (Kyrpolis) infusion for two days back to back with oral dexamethazone on the first day of treatment.

I’m feeling really good. I had this treatment on Monday/Tuesday of November and went directly to a Thanksgiving retreat with some great friends. I took a 3 mile walk after turkey dinner and went snow tubing the next day followed by attending a Utah men’s basketball game in the evening. Full days with solid energy and limited restrictions.
Controlling the things I can control: Diet and Exercise, Sleep and Mindset.

3 Comments

  1. gaetanche on May 20, 2021 at 4:38 pm

    Many great news in the last month. I am happy to see that you are in better shape and the treatments now are working well for you to get better markers for your cardiac amyloidosis. You are doing all those things especially a positive attitude and great working exercices that help you a lot in fighting the disease. My thoughts are with you and your family.

  2. kms386 on May 20, 2021 at 4:44 pm

    Hey, I have tough times with IV’s too. Sometimes 6 + sticks a week for one treatment. Want to know what has changed everyting!   Bring a heating pad with you. 1 stick per treatment every time ive had a heating pad. Game changer

  3. Viktor Vik on May 20, 2021 at 4:56 pm

    splendid! you live in a very beautiful country that there that’s it all cool things available!

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